If you have WS in your family, Please join the Society.


Thanks for visiting our site, if you are interested in Wolfram Syndrome please visit the following sites, that tell about the disease .

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Learning from others with serious conditions:


Band-aides and Blackboards

Alstrom Syndrome - has many of the same symptoms as Wolfram Syndrome, but not the same disease.

Links to other Wolfram Syndrome Sites:

#598500 WOLFRAM SYNDROME, MITOCHONDRIAL FORM
Information regarding a second form of Wolfram Syndrome

Morbidity and Mortality in the Wolfram Syndrome
Brace yourself. This gives you the cold hard facts.

Researchers Identify And Isolate First Gene For A Form Of Insulin-Dependent Diabetes
This is an excellent Science Daily article on the discovery of WS gene.

The Beaver
A memorial page to a wonderful talented man, the honors bestowed upon him, and experience of his life. 

OMIM-Online article on WS with many links to specific references.

Resources for more information Resources
For more information on Wolfram Syndrome, please contact:

National Organization for Rare Disorders, Inc.(NORD)
P.O. Box 8923
New Fairfield, CT  06812-8923
Telephone: (203) 746-6518
Fax: (203) 746-6481
Toll free: (800) 999-6673
TDD: (203) 746-6927
e-mail: orphan@rarediseases.org
Home Page: http://www.rarediseases.org

Juvenile Diabetes Foundation International
120 Wall Street
19th Floor
New York, NY  10005-4001
(212) 785-9500
(800) 533-2873
e-mail: info@jdfcure.org
Home Page: http://www.jdfcure.org
 
 

NIH/National Diabetes Information Clearinghouse
1 Information Way
Bethesda, MD  20892-3560
(301) 654-3327
(800) 891-5388
Home Page: http://www.nih.gov/
 

National Association for Parents of the Visually Impaired
P.O. Box 317
Watertown, MA  022471-0317
(617) 972-7441
(800) 562-6265
e-mail: napvi@perkins.put.k12.ma.us
Home Page: http://www.spedex.com/napvi
 
 

Vision Foundation, Inc.
818 Mt. Auburn Street
Watertown, MA  02472
(617) 926-4232
(800) 852-3029
e-mail: mablind@tiac.net
Home Page: http://www.mablind.org
 
 

NIH/National Eye Institute
Building 31 Rm 6A32
31 Center Dr MSC 2510
Bethesda, MD  20892-2510
(301) 496-5248
e-mail: 2020@B31.nei.nih.gov
Home Page: http://www.nei.nih.gov/
 
 

NIH/National Heart, Lung and Blood Institute Information Center
P.O. Box 30105
Bethesda, MD  20824-0105
(301) 251-1222
e-mail: nhlbiic@dgsys.com
Home Page: http://www.nih.gov/
 

National Association for Visually Handicapped
22 West 21st Street
New York, NY  10010
(212) 889-3141
e-mail: staff@navh.org
Home Page: http://www.navh.org
 
 

American Diabetes Association
National Service Center
1660 Duke St.
Alexandria, VA  22314
(703) 549-1500
(800) 342-2383
WebSite: http://www.diabetes.org/home.jsp
 

Diabetes Insipidus Foundation, Inc.
4533 Ridge Drive
Baltimore, MD  21229
(410) 247-3953
e-mail: diabetesinsipidus@maxinter.net
Home Page: http://www.diabetesinsipidus.org/
 
 

United Mitochondrial Disease Foundation
P.O. Box 1151
Monroeville, PA  15146-1151
(412) 793-8077
e-mail: umdf@nb.net
Home Page: http://www.umdf.org

For information on genetics and genetic counseling referrals, please contact:

March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY  10605
(914) 428-7100
(888) 663-4637
Home page: http://www.modimes.org/
e-mail: resourcecenter@modimes.org
 
 

 

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